What is Stiff-Person Syndrome? Celine Dion’s sister provides update on rare neurological disorder

FILE PHOTO: Singer Celine Dion arrives to attend the Haute Couture Fall/Winter 2019/20 collection show by designer Alexandre Vauthier in Paris, France, July 2, 2019. REUTERS/Regis Duvignau
FILE PHOTO: Singer Celine Dion arrives to attend the Haute Couture Fall/Winter 2019/20 collection show by designer Alexandre Vauthier in Paris, France, July 2, 2019. REUTERS/Regis Duvignau
Canadian singer Celine Dion said she has been diagnosed with a rare neurological disorder called Stiff-Person Syndrome that causes muscle spasms.

Her older sister Claudette has now revealed the singer no longer has ‘control over her muscles.’

A year after the My Heart Will Go On hitmaker was forced to cancel her world tour last December, Claudette confirmed the singer may not be returning to the stage. 

 

What is Stiff-Person Syndrome?

Stiff-Person Syndrome causes muscle rigidity and increased sensitivity to sound, touch and emotional stimuli that can catalyse muscle spasms.

Dion’s muscle spasms led her to postpone her Las Vegas residency in October 2021. However, the star hasn’t publicly shared a diagnosis until now.

“While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms that I’ve been having,” she said. “Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to.”

Celine Dion cancels shows 

The “My Heart Will Go On” singer said that while she misses her fans, her health is her focus right now.

“I’m working hard with my sports medicine therapist every day to build back my strength and my ability to perform again,” she said. “But I have to admit it’s been a struggle.”

Thanking her fans for their support, she became emotional.

“All I know is singing,” the Grammy winner said.

 

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