As is the case in the world of Mental Health, illness and diseases that lack sufficient study and scientific documentation often fall victim of misdiagnosis and misunderstanding. This is both frustrating and dangerous and aids in further propagation of stigmatism for patients suffering with these real illnesses and diseases.
Chronic Fatigue Syndrome is one of these misunderstood conditions that is so often met with misdiagnoses and unrelenting disbelief from parts of the medical community.
Earlier this month, Ellen Clayton and her colleagues at the Institute of Medicine released a report recommending the renaming of CFS – as Systematic Exertion Intolerance Disease.
The report outlined the importance of recognition and responsiveness in allowing sufferers of CFS access to medical support, help and diagnosis in a safe environment.
“The primary message of this report is that ME/CFS is a serious, chronic, complex, multisystem disease that frequently and dramatically limits the activities of affected patients,” noted the authors.
The relabeling of CFS calls for the removal of ‘fatigue’ from the illness, stating that this is what is often misinterpreted as soliciting an empathetic response from non-suffers whereby they assume to understand what ‘fatigue’ feels like.
When, in fact, the experience of CFS suffers can range from light-headedness and blurred vision to an absolute and all-encompassing lack of ability to foster enough energy to move, where even breathing becomes a fight.
This report has also brought attention to new studies outlining the evidence pointing towards the biological roots of the condition, as well as new primary testing methods for the disease.
These are all positive steps in reconditioning the medical community and outlining the severity of the disease to a larger audience. This, in turn, will allow suffers and those who have been misdiagnosed to commence treatment and medical support.